The Regulation of Lobbying legislation is designed to provide information to the public about who is lobbying whom about what.
The Register of Lobbying is maintained by the Standards in Public Office Commission (Standards Commission). In compliance with The Regulation of Lobbying Act, IFAN registered in November 2015. We have submitted nil returns to date. www.lobbying.ie
Minister for Health Leo Varadkar has signed new laws allowing more life-saving rescue medicines to be administered by trained members of the public in life-saving situations, such adrenaline for severe allergic reactions.
All three devices currently available in Ireland at the present time have unique elements to their delivery. Patients and carers all have to be trained in advance, in delivery technique.
IFAN believes that merely ensuring that there are enough devices in the country is no longer an acceptable standard. We are a small market and thus a vulnerable market. We strongly believe that the current haphazard supply of AAIs in Ireland is forcing customers to purchase devices that they and other carers have not been trained to use, thus placing patients at risk of not having adrenaline correctly delivered in the event of a life threatening allergic reaction. This could result in a completely avoidable fatality.
Click here to read an extract from the original communication sent to the HPRA on September 2nd 2015.
Response received from the HPRA on October 2nd 2015.
Click here to read IFAN’s reply to the HPRA response on October 12th 2015
Jerry Buttimer T.D. asked the Minister for Health if he would provide an update on the public consultation commenced regarding easier access to rescue drugs in emergencies (including adrenaline); when consultation will be complete; when actions will be taken following the consultation; and if he will make a statement on the matter.
Nine international professional allergy organisations today e-published a consensus post LEAP study. Its purpose is to “highlight emerging evidence to existing allergy prevention guidelines regarding potential benefits of supporting early, rather than delayed, peanut introduction during the period of complementary food introduction in infants”. The communication summarises new evidence, comments on how this evidence might affect present guidance for early complementary feeding practices, provides interim guidance regarding early peanut introduction and ends with a rationale for evaluating and applying this policy to a high-risk population.
Read the draft e publication from JACI online here
Widely reported in the media at home and in the UK on June 5th is Making-Sense-of-Allergies: a report which has investigated ideas about the causes, diagnosis and treatment with a group of allergy specialists:
“Theories about allergy – some from medical research and some from lifestyle ‘gurus’ – have led to conflicting ideas about whether allergens should be avoided or homes are too hygienic. Shops, clinics and websites sell allergy tests that don’t work. Allergies are difficult to diagnose and share their symptoms with many other conditions. According to practitioners, far more people think they have an allergy than actually do, which might be why people coping with dangerous allergies complain that waiters think they’re just fussy or nursery staff don’t take their child’s allergy seriously. Are the numbers being swelled by the ‘worried well’? Has allergy become a catch-all self-diagnosis that might be masking other problems or anxieties about modern life?”